{"id":692,"date":"2024-05-09T14:17:20","date_gmt":"2024-05-09T14:17:20","guid":{"rendered":"https:\/\/dev.wolframheroes.com\/?page_id=692"},"modified":"2024-05-12T10:29:15","modified_gmt":"2024-05-12T10:29:15","slug":"patient-registration","status":"publish","type":"page","link":"https:\/\/www.wolframheroes.com\/ar\/patient-registration\/","title":{"rendered":"\u062a\u0633\u062c\u064a\u0644 \u0627\u0644\u0645\u0631\u0636\u0649"},"content":{"rendered":"<div data-elementor-type=\"wp-page\" data-elementor-id=\"692\" class=\"elementor elementor-692\" data-elementor-post-type=\"page\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-df71ed1 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"df71ed1\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-d1ea1de\" data-id=\"d1ea1de\" data-element_type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-ea2cbe5 elementor-widget elementor-widget-heading\" data-id=\"ea2cbe5\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.21.0 - 25-04-2024 *\/\n.elementor-heading-title{padding:0;margin:0;line-height:1}.elementor-widget-heading .elementor-heading-title[class*=elementor-size-]>a{color:inherit;font-size:inherit;line-height:inherit}.elementor-widget-heading .elementor-heading-title.elementor-size-small{font-size:15px}.elementor-widget-heading .elementor-heading-title.elementor-size-medium{font-size:19px}.elementor-widget-heading .elementor-heading-title.elementor-size-large{font-size:29px}.elementor-widget-heading .elementor-heading-title.elementor-size-xl{font-size:39px}.elementor-widget-heading .elementor-heading-title.elementor-size-xxl{font-size:59px}<\/style><h1 class=\"elementor-heading-title elementor-size-default\">\u062a\u0633\u062c\u064a\u0644 \u0627\u0644\u0645\u0631\u0636\u0649<\/h1>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-6e0425a elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"6e0425a\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-0c7fac8\" data-id=\"0c7fac8\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-f7a0495 elementor-widget elementor-widget-text-editor\" data-id=\"f7a0495\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.21.0 - 25-04-2024 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\t<p>\u0644\u0642\u062f \u062a\u0645 \u0627\u0644\u062a\u0639\u0627\u0648\u0646 \u0645\u0639 \u0627\u0644\u0645\u0646\u0638\u0645\u0629 \u0627\u0644\u0648\u0637\u0646\u064a\u0629 \u0644\u0644\u0627\u0636\u0637\u0631\u0627\u0628\u0627\u062a \u0648\u0627\u0644\u0627\u0645\u0631\u0627\u0636 \u0627\u0644\u0646\u0627\u062f\u0631\u0629 (NORD)\u060c \u0644\u0644\u062d\u0635\u0648\u0644 \u0639\u0644\u0649 \u0627\u0648\u0644 \u0633\u062c\u0644 \u0639\u0627\u0644\u0645\u064a \u0644\u0645\u0631\u0636\u0649 \u0645\u062a\u0644\u0627\u0632\u0645\u0629 \u0648\u0648\u0644\u0641\u0631\u0627\u0645\u060c \u0648\u0647\u0648 \u0627\u0644\u0623\u0648\u0644 \u0645\u0646 \u0646\u0648\u0639\u0647 \u0648\u0647\u0648 \u064a\u0639\u062f \u0623\u0633\u0627\u0633 \u0641\u064a \u0645\u062c\u0627\u0644 \u0627\u0644\u0623\u0645\u0631\u0627\u0636 \u0627\u0644\u0646\u0627\u062f\u0631\u0629.<\/p><p>\u0645\u0634\u0627\u0631\u0643\u062a\u0643 \u062a\u0633\u0627\u0639\u062f\u0646\u0627 \u0641\u064a \u062a\u062d\u0633\u064a\u0646\u060c\u0631\u0639\u0627\u064a\u0629 \u0627\u0644\u0645\u0631\u064a\u0636 \u0648 \u062a\u0639\u0632\u064a\u0632 \u0635\u0648\u062a\u0646\u0627\u060c\u0648 \u0631\u0641\u0639 \u0641\u0631\u0635\u0629 \u062a\u0637\u0648\u064a\u0631 \u0639\u0644\u0627\u062c\u0627\u062a \u0644\u0644\u0623\u0645\u0631\u0627\u0636 \u0627\u0644\u0646\u0627\u062f\u0631\u0629 \u0628\u0634\u0643\u0644 \u0627\u0633\u0631\u0639.<\/p><p>\u0633\u062c\u0644 \u0627\u0644\u064a\u0648\u0645 \u0639\u0644\u0649 <span style=\"text-decoration: underline;\"><span style=\"color: #121212;\"><a style=\"color: #121212; text-decoration: underline;\" href=\"https:\/\/wsglobalregistry.iamrare.org\/\">wsglobalregistry.iamrare.org<\/a><\/span><\/span> \u0644\u062a\u062d\u0635\u0644 \u0639\u0644\u0649 \u0645\u0639\u0644\u0648\u0645\u0627\u062a \u0645\u0647\u0645\u0629 \u062d\u0648\u0644 \u0627\u0644\u0639\u0644\u0627\u062c\u060c \u0648\u0627\u0644\u0628\u062d\u062b\u060c \u0648\u0627\u0644\u0645\u0648\u0627\u0631\u062f\u060c \u0648\u0627\u0644\u0645\u0628\u0627\u062f\u0631\u0627\u062a \u0627\u0644\u0623\u062e\u0631\u0649.<\/p><p class=\" translation-block\">\u0644\u0644\u0627\u0633\u062a\u0641\u0633\u0627\u0631\u0627\u062a \n\u064a\u0631\u062c\u0649 \u0625\u0631\u0633\u0627\u0644 \u0628\u0631\u064a\u062f \u0625\u0644\u0643\u062a\u0631\u0648\u0646\u064a \u0625\u0644\u0649\u00a0 mg@mgfoundation.org.<\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-3b99929\" data-id=\"3b99929\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-9816c59 elementor-align-right elementor-mobile-align-left elementor-widget elementor-widget-button\" data-id=\"9816c59\" data-element_type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/wsglobalregistry.iamrare.org\/\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">\u0633\u062c\u0644<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"<p>Patient Registration We have partnered with the National Organization of Rare Disorders, Inc. \u201cNORD\u201d to implement the first-ever WS global patient owned registry, a priority in the field of rare disease. Please help us improve patient care, strengthen our voice, and improve the chance for quicker drug development. Sign up today at wsglobalregistry.iamrare.org to receive [&hellip;]<\/p>","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"elementor_header_footer","meta":{"footnotes":""},"class_list":["post-692","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.wolframheroes.com\/ar\/wp-json\/wp\/v2\/pages\/692"}],"collection":[{"href":"https:\/\/www.wolframheroes.com\/ar\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.wolframheroes.com\/ar\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.wolframheroes.com\/ar\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.wolframheroes.com\/ar\/wp-json\/wp\/v2\/comments?post=692"}],"version-history":[{"count":16,"href":"https:\/\/www.wolframheroes.com\/ar\/wp-json\/wp\/v2\/pages\/692\/revisions"}],"predecessor-version":[{"id":711,"href":"https:\/\/www.wolframheroes.com\/ar\/wp-json\/wp\/v2\/pages\/692\/revisions\/711"}],"wp:attachment":[{"href":"https:\/\/www.wolframheroes.com\/ar\/wp-json\/wp\/v2\/media?parent=692"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}